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MULTICENTRE
STUDIES
APLS BABIES REGISTER
REGISTER OF INFANTS
BORN OF MOTHERS UIT ANTIPHOSPHOLIPID SYNDROME ("APLS BABIES REGISTER”)
COORDINATORS
Marie-Claire Boffa, Jean Charles
Piette, Du Le Thi Huong, Angela Tincani, David Faden, Mario Motta, Marie-Hélène
Aurousseau, Michèle Uzan, Lionel Carbillon, Eric Lachassinne, Olivier Fain and
Philippe Le Toumelin.
AIM
The study is a prospective,
consecutive, European, multicentre study to follow a cohort of infants born
from mothers with antiphospholipid syndrome (APS) from birth to the age of 5
years. The register will include all the consecutive infants born in a maternity
from mothers with APS. Data will be collected during 5 years, the expectation
is around 300 cases with a good European participation.
OBJECTIVES
1. To investigate the presence
of antiphospholipid antibodies in the new-born, and study their relationships
with the mother´s clinical, biological and therapeutical status.
2. To evaluate the antibody
disappearance and the antibody consequences on the child evolution from birth
to 5 years old.
For additional
information and applications, please e-mail: philippe.letoumelin@avc.ap-hop-paris.fr
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Web contens: EWPSLE Info Desk. |
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Last updated: 23 January 2004 |
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